Exactly, What Is Endo, Who Can Get It, & When to Get Help?
Endometriosis can be a lonely journey. Surround yourself with supportive people.
In case you haven't heard, March is "Endometriosis Awareness Month!" This month is extra special to me because it emphasizes this complicated condition and sheds light on all women who have suffered for so long without any answers.
I bet you are wondering what endometriosis is. I could tell you all about my struggle with stage IV endometriosis and share with you some of the stories I've heard from other women but I'd rather give you the "real" of what endometriosis is said to be from a medical perspective. Understanding what it's like to live with endometriosis can be difficult for those who haven't experienced it.
Endometriosis is a medical condition in which tissue like the lining of the uterus (endometrium) grows outside the uterus. This tissue can be found on the ovaries, fallopian tubes, the outer surface of the uterus, and other organs in the pelvic region. In rare cases, it can spread beyond the pelvic area.
Symptoms:
Pelvic pain (often associated with menstrual periods)
Heavy or irregular periods
Pain during intercourse
Pain with bowel movements or urination (especially during menstruation)
Infertility
Fatigue, bloating, nausea
Causes:
The exact cause is unknown, but possible factors include:
Retrograde menstruation (menstrual blood flows backward into the pelvic cavity)
Genetic factors
Immune system disorders
Hormonal imbalances
Treatment:
There is no cure, but treatments focus on managing symptoms:
Medications (pain relievers, hormone therapy)
Surgery (to remove endometrial growths in severe cases)
Lifestyle changes (diet, exercise, stress management)
Would you like information on diagnosis or treatment options in more detail?
Understanding what it's like to live with endometriosis can be difficult for those who haven't experienced it. Here are the top things to know:
1. Chronic, Unpredictable Pain
The pain isn't just "bad period cramps." It can be severe, constant, and unpredictable, affecting daily life.
It can feel like stabbing, burning, or deep aching and often doesn't go away with painkillers.
2. It's More Than Just Periods
Pain can occur anytime, not just during menstruation.
It can cause pain during sex, bowel movements, urination, and even ovulation.
Many experience chronic fatigue, nausea, and digestive issues.
3. It Can Affect Fertility
Some people with endometriosis struggle to conceive due to scarring and inflammation.
Infertility can be emotionally devastating, adding to the mental toll.
4. Diagnosis Can Take Years
Many people suffer for 5-10 years before getting diagnosed.
Symptoms are often dismissed as "normal period pain" or misdiagnosed as IBS, anxiety, or other conditions.
Laparoscopic surgery is the only definitive way to diagnose it.
5. Treatment Isn't One-Size-Fits-All
There is no cure, only symptom management.
Hormonal treatments (birth control, IUDs, etc.) help some but can have side effects.
Surgery (laparoscopy or excision) can relieve symptoms but isn't always permanent.
Most doctors will tell you that surgery is the only way, but please weigh out all of your options.
Many turn to diet, exercise, and alternative medicine to help manage pain.
6. The Mental and Emotional Toll is Huge
Living with chronic pain and uncertainty can cause anxiety, depression, and isolation.
Many feel dismissed by doctors, friends, or family who don't understand how debilitating it is.
Having a support system is crucial to coping.
7. It's an Invisible Illness
Someone with endometriosis might look "fine" but be in excruciating pain.
Just because they can function doesn't mean they aren't suffering.
“We are stronger together in this fight against all things endometriosis.”
Would you like insights into how to support someone with endometriosis?